Cystic fibrosis

For information about the COVID-19 situation please see the COVID-19 page.

Currently we plan clinics based on appointment availability and decide on an individual patient basis whether a face-to-face or videoconsultation. We will continue to review children and young people with the same regularity as ever. If you have a preference whether you would prefer a remote or face-to-face consultation, please discuss that with us.

For information on how to take a cough swab – please see the information page

Children and Young People’s Cystic Fibrosis Service

The Specialist Cystic Fibrosis (CF) Centre at the Nottingham Children’s Hospital cares for around 180 children and young people a year in Derbyshire, Nottinghamshire and Lincolnshire.

We see children and young people at the QMC, and at other hospitals across the East Midlands through a system of shared care. Other hospitals include: 

  • Royal Derby Hospital
  • Chesterfield Royal Hospital
  • King’s Mill Hospital (Sutton-in-Ashfield, Notts)
  • Lincoln County Hospital
  • Pilgrim Hospital (Boston, Lincs)

CF Clinics in Nottingham

Patients usually attend clinics every 8 weeks, or more often when newly diagosed or unwell. The clinics are:

  • on Tuesday or Wednesdayafternoons.
  • at Children’s Clinic South, B Floor, South Block, Queen’s Medical Centre.

Children and young people will be seen by a Doctor and other CF Specialists including a Nurse, Physiotherapist, Dietician, Social Worker and Psychologist. We may suggest parents of teenagers leave the clinic room for some of the appointment to help young people develop independence. 

Inpatient admissions

Admissions are arranged in advance where possible.

When patients with CF are admitted for treatment, they will typically stay in the hospital for two weeks, and sometimes longer. You will have your own en-suite side room. We appreciate this can be lonely and boring for children, young people and their families. To keep children occupied:

  • the play specialist can bring things to do and spend time with children and young people
  • during the school term, the hospital school teacher is there to provide school work and educational activities
  • the Hospital Youth Service provides support and activities for young people from 11 to 24 years including its own Youth Room

Transition to adult services

We want all young people with CF to become confident adults in the best possible health. The child and adult CF services work closely together to help young people make the transition to the adult service, usually between their 16th and 18th birthday. 

In the year or two leading up to transition, young people have some of their routine appointments at special ‘transition clinics’ at the adult centre, where they are seen by members of both the adult and children’s team. This enables young people, their parents and the adult team to meet, ask questions and learn about each other – well before their care is transfered to the adult service.

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